My cancer is a very rare one infact 1 in 2 million people get this its called pseudomyxoma peritonei . There is only one surgeon in NZ that can give me the surgery i need and the chemo treatment. I will need a 8-10 hour surgery which involved having my pelvic wall lining cut and scraped out. I will then need about a 90 min chemo wash through my pelvic cavity to hopefully kill any cancer cells that maybe left behind. The cancer i have doesnt go into the blood stream so the normal form of chemo treatment is in effective. Looking at 8 week recovery time.
I have been told that without the chemo wash there is a 80% re currance rate and with the chemo 50/50. The more i learn about this disease the more it seems there really isnt alot known about it and dr's can only seem to give ball park figures. If it returns its usually within a few years if this happens life expectency is anywhere from 10-15yrs. How much of that is quality of life i have no idea.
The cancer continues to form as a mucus mass and eventually takes over the pelvic cavity and organs. I have been assured we have found it early enough and my chances are greatly improved by this. Alot of people are very advanced when they are diagnosed usually through surgery for other problems.
In a way im a bit peeved that of all cancers to get why could it not have been one that there was more specialists and information available so i could be a bit more informed, but it is what it is and im on a mission to learn everything i can about this. Im looking into alternatives and lifestyle changes i can do to increase my chances so im around as long as i can be. I will be doing some posts soon on the lifestyle changes we are doing and alternatives.
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